Changing Attitudes About Dementia

While a 2012 survey found that more Americans fear Alzheimer’s disease than they do cancer, many professionals are starting to rethink their attitude toward the disease. Bill Thomas, a geriatrician who is trying to reframe people’s view on aging, says for many the disease has been “swathed in shame” and stuck in what he call “the tragedy narrative.” Without dismissing the challenges of the disease, he and other experts say that it may be beneficial to both caregivers and patients to take an adaptive approach to dealing with Alzheimer’s that is more flexible, spontaneous, and expansive.

Mary Fridley, co-creator of a workshop called The Joy of Dementia (You’ve Got to Be Kidding!), stresses that in spite of the fact that we know dementia to be extremely painful, she feels too much time is spent on medicalizing the disease. Rather she truly believes “it is an opportunity, if people so choose, to be improvisational, to be silly, to play, to free ourselves from the constraints of truth and knowing and assumptions.”

One study out of Canada supports this premise by reporting that dementia patients’ symptoms declined and their psychologically outlook greatly improved after 12-weeks of visits from “elder clowns” who engage them with empathy, humor, and improvisation. Another recent study from Australia found that “dementia-care staff with positive attitudes and ‘person-centered’ strategies felt more competent about their ability to provide care.”

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Source: mercurynews.com/2019/02/21/a-joyful-existence-with-alzheimers-yes-joyful/